Stroke vs Meds…….A VERY Tricky Balancing Game!

On May 8th, I posted about having finally transitioned over from taking Baclofen to a new med Requip.  I was very excited about the possibility of having found a med that not only quieted the right leg & arm spasticity at night, but also aided in my sleep, without waking the next day feeling like I was a walking zombie! zombie

Well last week I had a major “stroke moment”! I completely forgot to keep track of how many of the new pills I had and ran out!  So for two nights, I had to fall back on my Baclofen.

This little Faux Pas did a few things:  1) I realized how groggy and “out of it” the Baclofen made me feel, 2) Even though it made me sleepy, I was still waking SEVERAL times each of the two nights with painful muscle contractions and spasms.  Sleep, wake, sleep, wake. And 3)  I WILL NEVER FORGET TO CHECK MY SUPPLY OF MEDICATIONS!

I was exhausted by day two when I was able to get a hold of the doctor and get my Rx refilled!

I am finally back on track and today I woke feeling WONDERFUL, rested and ready to go!

raringtogoAlthough I have found that taking 3 tabs of my new med with 1 Baclofen seems to give me more relief than just taking the Requip alone.  I will give this a week, and then try to just take the Requip alone. If I can, it will be great as the price for Baclofen, even with insurance, has skyrocketed here in the West.

I will report back on this.

Feeling Great On New Medicine For My Spasticity!

I’ve been on Baclofen for three years now since my stroke, for my night-time spasticity with very little success.  Yes, it helped…..mildly.  But even at the highest tablet dose, I was still waking up 4-5 times a night with my right leg & arm in spasms!

I didn’t want to add another, stronger medicine, to the others I’m already taking.

So, on my last visit, after telling my doctor again that the Baclofen wasn’t really working, and I was exhausted from not getting enough sleep, we decided to try another medicine:  REQUIP.  This is a med used for muscle spasms, mostly with Parkinson’s patients.

I was ready to try anything.  So for the last 2 weeks, I’ve been lowering my dose of Baclofen, while slowly introducing the Requip.

The last three nights, I’ve  taken 1 Baclofen (vs 4) and 3 Reqiuip.  And I am so excited to report it’s working great!!!!

The last three days, as the Requip was slowly upped and the Baclofen was taken down to 1, I’ve felt more alert, more “my old self”, with more energy and ready to “get moving”.  Best of all?  I am sleeping thru the night with no painful spasms during the night!

The folks I work with have even commented on the difference in my alertness, energy, and mood.

I’m keeping my fingers crossed that my body doesn’t throw a whammy in there and get used to the med and start spasming again, but for now, I’m HAPPY!

As always, it’s up to the patient to SPEAK UP, SPEAK OUT, and MAKE THE DOCTOR listen!  If your meds, your therapy, your treatment, aren’t working, don’t just “go along”, assuming there’s nothing else.

Today, for now, I’m almost pain-free, sleeping great, and raring to go during the day, all because I didn’t give up and I spoke up!