Feeling Great On New Medicine For My Spasticity!

I’ve been on Baclofen for three years now since my stroke, for my night-time spasticity with very little success.  Yes, it helped…..mildly.  But even at the highest tablet dose, I was still waking up 4-5 times a night with my right leg & arm in spasms!

I didn’t want to add another, stronger medicine, to the others I’m already taking.

So, on my last visit, after telling my doctor again that the Baclofen wasn’t really working, and I was exhausted from not getting enough sleep, we decided to try another medicine:  REQUIP.  This is a med used for muscle spasms, mostly with Parkinson’s patients.

I was ready to try anything.  So for the last 2 weeks, I’ve been lowering my dose of Baclofen, while slowly introducing the Requip.

The last three nights, I’ve  taken 1 Baclofen (vs 4) and 3 Reqiuip.  And I am so excited to report it’s working great!!!!

The last three days, as the Requip was slowly upped and the Baclofen was taken down to 1, I’ve felt more alert, more “my old self”, with more energy and ready to “get moving”.  Best of all?  I am sleeping thru the night with no painful spasms during the night!

The folks I work with have even commented on the difference in my alertness, energy, and mood.

I’m keeping my fingers crossed that my body doesn’t throw a whammy in there and get used to the med and start spasming again, but for now, I’m HAPPY!

As always, it’s up to the patient to SPEAK UP, SPEAK OUT, and MAKE THE DOCTOR listen!  If your meds, your therapy, your treatment, aren’t working, don’t just “go along”, assuming there’s nothing else.

Today, for now, I’m almost pain-free, sleeping great, and raring to go during the day, all because I didn’t give up and I spoke up!

Are They Serious?

I was just online searching different sites about spasticity.

I am amazed at how most articles seem to be written by people who have no clue as to what a stroke survivor goes through in regards to spasticity and pain.

“Take pain meds, muscle relaxant medication, and maybe try different physical therapy techniques and you should be good to go.”

There isn’t really any sense that the medical community has an answer.  When reading all the articles out there, you get the feeling everyone is just guessing, and hoping they “get it right”.

What really upset me though was when I came across one article from a prestigious university that said, ” The way to cure spasticity is to avoid having a stroke in the first place.”  NO KIDDING. ..REALLY?

And they received millions in federal funding for that grand conclusion.

First Time Sick Since Stroke……..

Two days ago, I came down with a horrid cold that my high school freshman brought home.  Being “Mom”, I, of course, wanted to nurse him back to health, which unfortunately, this time, meant I got it 😦

This is the first time I’ve gotten sick since my stroke & I have to say it, “It seems different”.  I find that I am much more tired and “discomboobulated” (a word my mother used to use)!

Before my stroke, with a cold, I would feel run down and tired, runny nose, etc…  But with this cold, I find that the stroke symptoms are exacerbated.  I find that my mind is not as clear, get fuddled much easier, and my right side (the stroke affected side) is just not as “on” as it has been.

I am finding that my body reacts so differently since my stroke to so many situations that it never did before.  What was once “just a cold”, now has me seeming to be more “off” than usual.

You Have Got To Be Kidding!

Well, the doctor’s office called with my blood & X-ray results.  Yes, I do have Gout.  Gout, for God’s sake……really?  I’ve been reading about it online and it is treatable with diet & medication.  I honestly thought the painful hand joints were all from my stroke, until I noticed my joints starting to swell.

The doctor had mentioned a medication called Allopurinol for gout when I went in for the tests.  I looked it up online, & after reading the mile long “possible side effects” I ran into this fun, little tidbit:  Allopurinol may impair your thinking or reactions. Be careful if you drive or do anything that requires you to be alert.

Seriously!  I laugh every time I read that!

Between my Baclofen making me somewhat “out of it”, this outta be a hoot folks!  

woohoo At the rate I am going, I am gonna have to switch out my store-bought pill box and instead start using Tupperware bowls, LOL!