Stroke vs Meds…….A VERY Tricky Balancing Game!

On May 8th, I posted about having finally transitioned over from taking Baclofen to a new med Requip.  I was very excited about the possibility of having found a med that not only quieted the right leg & arm spasticity at night, but also aided in my sleep, without waking the next day feeling like I was a walking zombie! zombie

Well last week I had a major “stroke moment”! I completely forgot to keep track of how many of the new pills I had and ran out!  So for two nights, I had to fall back on my Baclofen.

This little Faux Pas did a few things:  1) I realized how groggy and “out of it” the Baclofen made me feel, 2) Even though it made me sleepy, I was still waking SEVERAL times each of the two nights with painful muscle contractions and spasms.  Sleep, wake, sleep, wake. And 3)  I WILL NEVER FORGET TO CHECK MY SUPPLY OF MEDICATIONS!

I was exhausted by day two when I was able to get a hold of the doctor and get my Rx refilled!

I am finally back on track and today I woke feeling WONDERFUL, rested and ready to go!

raringtogoAlthough I have found that taking 3 tabs of my new med with 1 Baclofen seems to give me more relief than just taking the Requip alone.  I will give this a week, and then try to just take the Requip alone. If I can, it will be great as the price for Baclofen, even with insurance, has skyrocketed here in the West.

I will report back on this.

If Only I Could Fall Asleep This Easily…..

When I went to pick up my last Rx of Baclofen, I noticed the first couple days I wasn’t sleeping well.  I was waking up with leg cramps, and once awake, I couldn’t fall back asleep.  After two days, I played detective and discovered that although my last Rx bottle said Baclofen and so did my new bottle, they were each made by a different manufacturer.  I called the pharmacist at Walgreen’s and asked if the two different meds were the same.  He said, “Even though they both say Baclofen, their formulas could be slightly different giving your body trouble.”  I phoned my Dr. and he said, “Just give it a few more days for your body to get used to it!”  Just love the medical profession!

Found this video and thought:  “Wish I could fall asleep this fast!”

Maybe Meditation Will Help Sleep?

I’ve been reading articles lately about sleep problems after a person has a stroke.  They says it’s normal to have sleep problems like having trouble getting comfortable, not being able to stay asleep all night, waking shortly after falling asleep & not being able to go back to sleep.

Since my stroke I know that I need more sleep than I ever did.  It’s not unusual for me to need 10-12 hours a night.  But I think part of “needing” that much sleep is because I’m not sleeping well through the night.  I’ve turned into a “pillow flipper”, trying to find the cool side of the pillow.  I spend a lot of time covering and uncovering my feet, and just generally trying to get comfortable. sleepThe spasticity in my right foot hurts, and so does my right shoulder. so that doesn’t help.  I wake up in the middle of the night, and it takes forever to fall back asleep.  And then when I do, it’s not a deep sleep.

Wondering now about trying basic meditation before sleep?  Anyone try it?  Or what do you do to help you sleep better??

Having “Melt-Downs”

I don’t know what else to call them, so I go with “melt-down”.  Seems that when I get over tired, or am in a stressful situation, if occurs…..the “Melt-Down”!

soconfusedThings get harder to understand.  People can be talking and it will be several seconds before I realize I was listening, but have absolutely no idea what they said.  Then I will start to get really agitated and may fixate on one word, repeating it over and over.  This to me, seems like a protective mechanism my brain is using to help calm me down.  Almost like a meditation mantra.  I can become panicky because it seems like everything around me is confusing.

So far, this has happened in the late afternoon or evening.  My “fix” is to go to bed.  Usually the next day, I can expect to feel like I’ve been run over by a truck.  My brain is foggy, and I feel like I am moving in slow motion.  My speech may be slower, and I will usually have trouble saying certain words correctly.

I had one of these “melt-downs” Monday evening.  Yesterday, as expected, I was in a fog and felt “out of it”.   Even though I didn’t sleep great last night, I woke feeling clear-headed and ready to deal with the world.

Always In The Back Of My Mind

Last night was a horrible night for me.  I kept waking up worrying about things.  One of the things I worry about most though is having another stroke & having it be much worse than the one I’ve already had.  I worry about how my life, & my family’s life, will deal with another blow.

Every time I start to get a headache, I wonder if the pain will increase.  Every time the back right side of my tongue starts to feel “weird”, I worry if it’s a smaller symptom waiting to join other symptoms.  And every time the right side of my head starts to get “tingly”, I stop and just wait it out………. wondering & worrying.

I try to not worry about it, but it’s always in the back of my mind.  I try to “live each day”, but, well, you know!

What time is it??? REALLY??

Since my stroke I find that I need a lot more sleep.  I can even sleep longer than my teenage boys! Ok, not really.  But it seems like it.


What time is it????

I went to bed last night at 10:00 p.m.  and when I turned over this morning & looked at the clock, it was 10:54 a.m!